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September 7, 2005

Message boards for cancer patients

category: Prostate Cancer posted by admin @ 3:04 am

Ron Seitzer washing clothes in the Mississippi

Ron Seitzer, who lives in the French Quarter of New Orleans, washing his clothes in the Mississippi River. AP photo from nola.com

ASCO HURRICANE KATRINA MESSAGE BOARD for cancer patients looking for their doctors or to communicate with other doctors.
Message boards at New Orleans Times-Picayune online (nola.com) for anyone needing to reach out or wanting to volunteer.

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September 6, 2005

Cancer survivor “nomads”

category: Prostate Cancer posted by admin @ 1:30 pm

Life’s Necessities Grow Scarcer at the Superdome By Wil Haygood Washington Post Staff Writer Saturday, September 3, 2005; Page A01

“A man walked up, wearing a T-shirt, work pants and moccasins. Raymond Williams had been a nomad for four days. ‘My wife’s got cancer,’ he said. ‘Throat cancer. And I got prostate cancer.’ He was accompanied by his wife, Leona, and 15 grandchildren. They were carrying their belongings in plastic bags. The Superdome was in the distance, like a painful mirage. ‘Both me and my wife are on medication. Leona, show him your neck.’

She pulled down a handkerchief that had been tied around her neck. The bandages that covered the incisions made from her throat cancer surgery were the color of river water. ‘We holding on through the grace of the Lord,’ Leona Williams said, in a pink blouse that somehow still looked very nice and pretty.

Every minute or so, Raymond Williams would twirl his neck, gathering his grandchildren close as possible, only to have them ease back out into the road, like figures on a bobbing raft.

Washington Post

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September 5, 2005

Desastres y emergencias

category: Prostate Cancer posted by admin @ 5:13 pm

Asistencia para recuperación en caso de desastre
Desinfección de emergencia del agua potable
Lo que puede hacer para ayudarse a sí mismo después de un desastre
Recuperarse después de un huracán
Organizaciones
En Espagnol

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NCI help for displaced cancer patients and family members

category: Prostate Cancer posted by admin @ 5:09 pm

If you are a displaced cancer patient or family member and need cancer information or referral, call the Cancer Information Service at 1-800-4-CANCER (Monday through Friday 9:00 am -4:30 pm local time) or click on the “LiveHelp” icon on this page to chat online with NCI Information Specialists (Monday -Friday 9am-11 pm EST).
NCI Responds to Hurricane Katrina

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Finding Alternative Sites for NCI Clinical Trials

category: Prostate Cancer posted by admin @ 5:04 pm

* Call 301-496-5725 if you are participating in a NCI-sponsored clinical trial in a hospital or oncology practice located in the hurricane-affected region. This line will be answered from 8:30 am to 5:00 pm (Eastern Time). After hours and on weekends, callers can leave a message and an NCI employee will respond within an hour. Provide as much information as you can about the clinical trial (for example Protocol number, type of cancer, name of test drug) to help NCI Information Specialists direct you to the appropriate resources.

# SELECT trial participants - Please check the Southwest Oncology Group’s SELECT Web site to locate a SELECT study center near your new location.

# STAR trial participants - Please check the National Surgical Adjuvant Breast and Bowel Project’s STAR Web site to locate a STAR study center near your new location.
NCI responds to Hurricane Katrina

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Hurricane Katrina: Cancer Concerns

category: Prostate Cancer posted by admin @ 5:01 pm

WebMD doctor Harold Burstein gives advice:

“Cancer patients, like others with chronic health problems, require regular, ongoing health delivery. Cancer patients typically receive chemotherapy or radiation therapy treatment on fixed schedules, such as daily radiation treatment for 5 weeks, or chemotherapy treatment every 2 weeks, and so forth. Disruptions in the scheduling and delivery of cancer treatment can interfere with optimal treatment outcomes….
Question: What should cancer patients actively being treated do right now?

The short term needs of the patient will differ depending on the tumor type, the treatment, and the available medical resources…”

WebMD

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Oncology Practices Able to Care for Patients in Need

category: Prostate Cancer posted by admin @ 3:05 pm

A list of oncology practices in Louisiana, Mississippi, and Texas–as well as in several other states–that have indicated that they are able to care for patients in need of treatment during this time. Patients can call the doctors’ offices or cancer centers listed below to learn more about how they can receive treatment while they are unable to access their primary care facility. asco.org

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ASCO Joins the Effort to Help Cancer Patients in Hurricane-Stricken Areas

category: Prostate Cancer posted by admin @ 3:01 pm

9/2/05—ASCO Joins the Effort to Help Cancer Patients in Hurricane-Stricken Areas
To help its members and their patients, ASCO has compiled this list of oncology practices, cancer centers and hospitals in the surrounding region that are operational and able to absorb patients in need of acute care.

The Department of Health and Human Services, Office of Public Health Emergency Preparedness (O PHEP) is in the process of identifying and mobilizing healthcare professionals and relief personnel to assist in Hurricane Katrina relief efforts. As our nation and the global community is now aware, the healthcare needs resulting from Katrina has reached an extremely critical nature. HHS has released details on types of assistance needed and how to volunteer here.

The Centers for Medicare & Medicaid Services has acted to assure that the Medicare, Medicaid and State Children’s Health Insurance Programs will flex to accommodate the emergency health care needs of beneficiaries and medical providers in the Hurricane Katrina devastated states. Following a waiver signed yesterday by HHS Secretary Leavitt, many of the programs’ normal operating procedures will be relaxed to speed provision of health care services to the elderly, children and persons with disabilities who depend upon them. Details of these provisions may be found at www.cms.hhs.gov/hki/. Also, the full text of a letter from CMS Administrator, Dr. Mark McClellan, may be found here.

Several practices have indicated they are open and able to take cancer patients who have been dislocated and are in need of acute care. The list of practices can be found here.

The Hurricane Katrina Message Board has already begun to work in reconnecting providers and patients. If you have been dislocated from your practice, or if you are seeking to contact a provider whose patient you are now treating, post your message on the Katrina Message Board.

Read more at www.asco.org.

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