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Advocacy Groups for People Dealing with Prostate Cancer

Blue Ribbon Pin for prostate cancer awareness

order from PCa survivor Rick Ward

Patient Rights

"Desde el momento en que se le descubre y por el resto de su vida, un individuo diagnosticado con cáncer es un sobreviviente." Estatutos NCCS

Health Coverage

Medicare information at AARP

Managed Care information at AARP

Medicaid information at AARP

Medicare Information from HGSA

Department of Veterans Affairs

• VA Agent Orange Home
• Agent Orange Compensation and Benefit Service
• Helpline 1-800-749-8387

Americans With Disabilites Act US Department of Justice.

Americans with Disabilities Act Document Center
Organized by Duncan C. Kinder with the assistance of the Job Accommodation Network and others.

Centre for Medicare Advocacy, Inc. (860) 456-7790 staffed by attorneys, paralegals, a nurse, and computer specialists. Provides legal advice, self-help materials, and representation to elders and people with disabilities who are unfairly denied Medicare coverage. Advice, written materials, and legal services are free to Connecticut residents and for a fee to others. A complete list of materials is available.

Patient Advocate Foundation's Patient Assistance Program (PAF PAP) co-payment assistance to insured Americans who qualify.

Patient Advocacy

National Prostate Cancer Coalition
Washington D.C

National Coalition for Cancer Survivorship

La Coalición Nacional de Supervivencia al Cáncer (NCCS, por sus siglas en inglés) es una red popular de individuos y organizaciones que trabajan en nombre de personas con todo tipo de cáncer.

Be your own cancer survival advocate. Download free Cancer Survival Toolbox "Building Skills That Work for You"


Patient Advocate Foundation
Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.  

PATIENT ADVOCACY RESOURCES A GUIDE FOR PATIENTS AND THEIR... Lyman Maynard Stowe Library, University of Connecticut Health Center, Farmington, Connecticut.

Center for Patient Partnerships at University of Wisconsin. "Works to empower patients as equal partners with providers to achieve successful health care outcomes. Center staff assist people with cancer and other life-threatening and chronic illnesses who are experiencing the red tape, confusion, fear and doubts, that often arise when diagnosed with a serious medical condition and impede access to quality healthcare."

Agency for Healthcare Research & Quality

National Prostate Cancer Coalition The NCCP asks you to write your Representatives and petition the President and Congress to demand increased federal funding for prostate cancer research. Help Make Prostate Cancer Research a National Health Priority!

Blue Ribbon Prostate Initiative "The Blue Ribbon Prostate Initiative was started by women who are veterans of the breast cancer wars."

Employment rights of cancer patients/survivors

Americans With Disabilities Act (ADA)

The ADA prohibits discrimination and ensures equal opportunity forr persons with disabilities in employment ...

Legal Information Network for Cancer
"LEGAL PROTECTION FOR THE EMPLOYMENT OF THE CANCER PATIENT
Please note this article was written in 1997. The law may have changed or been interpreted in subsequent years. The information contained in this article should not be construed as legal advice. It is always wise to consult an attorney on matters discussed on this web site.
BY: Ann C. Hodges
President-Elect, Legal Information Network for Cancer"

NCCS: Essential Care - Your Employment Rights As A Cancer Survivor

National Coalition for Cancer Survivorship Advocacy page: searching for "law employment" brings up groups like these below, which look helpful:

National Academy of Elder Law Attorneys
1604 North Country Club Rd Tucson,
AZ 85716 (520) 881-4005 520-325-7925 (fax)
The National Academy of Elder Law Attorneys, Inc. is a non-profit association that assists lawyers, bar organizations and others who work with older clients and their families. The Academy provides a resource of information, education, networking and assistance to those who deal with the many specialized issues involved with legal services to the elderly and people with special needs.

Job Accommodation Network
PO Box 6080 Morgantown,
WV 26506-6080
800-526-7234 304-293-5407 (fax)
jan@jan.wvu.edu
JAN is one of several ODEP projects.
JAN's mission is to facilitate the employment and retention of workers with disabilities by providing employers, employment providers, people with disabilities, their family members and other interested parties with information on job accommodations, self-employment and small business opportunities and related subjects.

Disability Rights Legal Center cancer resources section
(old name - Cancer Legal Resource Center)
Contact:
Toll Free #: 1-866-THE-CLRC or 1-866-843-2572
(213) 736-1455 voice / (213) 736-8310 tty
(213) 736-1428 fax
Email: clrc@majordomo.lls.edu
The CLRC provides information and educational outreach on cancer-related legal issues to people with cancer, their families, friends, employers, and those who provide services to them.

Intercultural Cancer Council (ICC) promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.

Lobbying (USA)

To find your representatives in the House and the Senate and the status of Bills and other new legislation go to:
http://www.house.gov/

http://www.senate.gov/

or to: Common CauseContact Congress

Mr. Smith E-Mails...Washington and/or The Media
(maintained by InfoSearch) Let lawmakers know what's on your mind by sending an e-mail letter to members of the US Congress as well as the President and Vice President. Send a "Letter to the Editor" to newspapers across USA

Legislative Information (Federal) Links to sources of information on Federal legislation including GPO Access, the House web site, the Senate web site, the Library of Congress Thomas system, and more.